2020 Outcomes Report Portland Shriners Hospital

The Portland Shriners Hospital is in- network for all major plans including: • Regence BlueCross BlueShield • Providence Health Plan Provider Information

Ritsema T, Koller U, Haisma EM, Nyström A. QR-313, an antisense oligonucleotide, shows therapeutic efficacy for treatment of dominant and recessive dystrophic epidermolysis bullosa: a preclinical study . J Invest Dermatol. 2020 Sep 15:S0022- 202X(20)32061-3. doi: 10.1016/j. jid.2020.08.018. PMID: 32946877 Sienko S . Addressing the needs of disabled children and their families during a pandemic: an AACPDM perspective . Dev Med Child Neurol. 2020 Sep; 62(9):1005. doi: 10.1111/ dmcn.14590.PMID: 32735369 H Scott Stadler , Craig A Peters, Renea M Sturm, Linda A Baker, Carolyn J M Best, VictoriaY Bird, Frank Geller, Deborah K Hoshizaki, Thomas B Knudsen, Jenna M Norton, Rodrigo L P Romao, Martin J Cohn. REVIEW - Meeting report on the NIDDK/AUA Workshop on Congenital Anomalies of External Genitalia: challenges and opportunities for translational research J Pediatr Urol. 2020 Dec;16(6):791-804. doi: 10.1016/j. jpurol.2020.09.012. Epub 2020 Sep 16. PMID: 33097421 DOI: 10.1016/j. jpurol.2020.09.012 Michael D Sussman , Susan E Sienko , Cathleen E Buckon , Coleman Hilton , Camila Bedeschi De Mattos, Charles d’Amato . Efficacy of corticosteroid in decreasing scoliosis and extending time to loss of ambulation in a single clinic: an effectiveness trial . J Child Orthop. 2020 Oct 1;14(5):421-432. doi: 10.1302/1863-2548.14.200156. Roye BD, Fields MW, Matsumoto H, Sponseller P, Pérez-Grueso FJS, Boachie-Adjei O, Hammerberg K, Welborn MC , Vitale MG; Pediatric Spine Study Group (PSSG). The Association Between the Utilization of Traction and Postoperative Complications Following Growing Rod Instrumentation for Early-onset Scoliosis . J Pediatr Orthop. 2020 Oct;40(9):e798-e804. doi:10.1097/ BPO.0000000000001628. PMID: 32658160 Long JT, Laron D , Garcia MC, McCarthy JJ. Screw Anterior Distal Femoral Hemiepiphysiodesis in Children With Cerebral Palsy and Knee Flexion Contractures: A Retrospective Case-control Study . J Pediatr Orthop. 2020 Oct;40(9):e873-e879. doi: 10.1097/BPO.0000000000001634. PMID: 32658158

Daniel Bouton , Lori Karol, Kiley Poppino, Charles Johnston. Continued deterioration in pulmonary function at average 23-year follow-up from early thoracic fusion in non-neuromuscular scoliosis . Spine Deform. 2020 Oct 19. doi: 10.1007/s43390-020-00224-z. Online ahead of print. Michelle C Welborn , Daniel Bouton , Nikolas Baksh, Timothy Degan, Susan Sienko . Image Distortion in Biplanar Slot Scanning: Patient-specific Factors . J Pediatr Orthop. 2020 Oct;40(9):468-473. doi: 10.1097/ BPO.0000000000001547. PMID: 32205683 Glenda Evangelina Comai, Markéta Tesařová, Valérie Dupé, Muriel Rhinn, Pedro Vallecillo-García, Fabio da Silva, Betty Feret, Katherine Exelby, Pascal Dollé, Leif Carlsson, Brian Pryce , François Spitz, Sigmar Stricker, Tomáš Zikmund, Jozef Kaiser, James Briscoe, Andreas Schedl, Norbert B Ghyselinck, Ronen Schweitzer , Shahragim Tajbakhsh. Local retinoic acid signaling directs emergence of the extraocular muscle functional unit . PLoS Biol. 2020 Nov 17;18(11):e3000902. doi: 10.1371/ journal.pbio.3000902. eCollection 2020 Nov. PMID: 33201874 PMCID: PMC7707851 DOI: 10.1371/journal. pbio.3000902 SaundraY Schlesinger , Seongkyung Seo, Brian A Pryce , Sara F Tufa , Douglas R Keene , Alice H Huang, Ronen Schweitzer. Loss of Smad4 in the scleraxis cell lineage results in postnatal joint contracture. Dev Biol. 2020 Nov 25;470:108-120.doi: 10.1016/j.ydbio.2020.11.006. Online ahead of print. PMID: 33248111 Susan Sienko , Michelle C Welborn . Image Distortion in Biplanar Slot Scanning: Part 2 Technology-specific Factors. J Pediatr Orthop, Nov/Dec 2020;40(10):587-591. doi: 10.1097/ BPO.0000000000001570.PMID: 32349023 Rachelle Riggers, Joe W Gray, John Muschler ,Young Hwan Chang. VISTA: VIsual Semantic Tissue Analysis for pancreatic disease quantification in murine cohorts . Sci Rep. 2020 Dec 1;10(1):20904. doi: 10.1038/s41598- 020-78061-3. Jennifer Sharp, Daniel Bouton , Lucas Anabell, Timothy Degan, Luke Ternes, Ge Huang, Christian Lanciault, Guillaume Thibault,

Bastida MF, Pérez-Gómez R, Trofka A, Zhu J, Rada-Iglesias A, Sheth R, Stadler HS , Mackem S, Ros MA. The formation of the thumb requires direct modulation of Gli3 transcription by Hoxa13 . Proc Natl Acad Sci U S A. 2020 Jan 14;117(2):1090-1096. doi: 10.1073/pnas.1919470117. Epub 2020 Jan 2. PMID: 31896583 Steinbach RJ, Haese NN, Smith JL, Colgin LMA, MacAllister RP, Greene JM, Parkins CJ, Kempton JB, Porsov E, Wang X, Renner LM, McGill TJ, Dozier BL, Kreklywich CN, Andoh TF, Grafe MR, Pecoraro HL, Hodge T, Friedman RM, Houser LA, Morgan TK, Stenzel P, Lindner JR, Schelonka RL, Sacha JB, Roberts VHJ, Neuringer M, Brigande JV , Kroenke CD, Frias AE, Lewis AD, Kelleher MA, Hirsch AJ, Streblow DN. A neonatal nonhuman primate model of gestational Zika virus infection with evidence of microencephaly, seizures and cardiomyopathy. PLoS One. 2020 Jan 14;15(1):e0227676. doi: 10.1371/ journal.pone.0227676. eCollection 2020. PMID: 31935257 IshikawaY, Mizuno N, Holden P , Lim PJ, Gould DB, Rohrbach M, Giunta C, Bächinger HP. The novel missense mutation Met48Lys in FKBP22 changes its structure and functions. Sci Rep. 2020 Jan 16;10(1):497. doi: 10.1038/s41598-019-57374-y. PMID: 31949249 Tan GK, Pryce BA , Stabio A, Brigande JV , Wang C, Xia Z, Tufa SF, Keene DR, Schweitzer R . Tgfß signaling is critical for maintenance of the tendon cell fate . Elife. 2020 Jan 21;9. pii: e52695. doi: 10.7554/eLife.52695. PMID: 31961320

• Cigna • Moda

• Care Oregon • HealthShare • Medicaid • United Healthcare

Provider Relations At Shriners Hospital for Children — Portland, we value relationships with our referring providers. It is our belief that effective communication and strong collaborative partnerships help to provide quality, seamless care to the children we serve. Contact Us: Davene Dietzler Director of Business Development ddietzler@shrinenet.org Steve Hargett Physician Liaison shargett@shrinenet.org Jennifer Nordgaard Physician Liaison jennifer.nordgaard@shrinenet.org Services Provided: • Education on programs, physicians, processes and services • Assistance with referrals, access and communication • Timely support for service concerns and issue resolution • Personalized hospital tour • Coordination of consult with surgeonerrals, access and communication • Timely support for service concerns and issue resolution • Personalized hospital tour • Coordination of consult with surgeon

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2020 Annual Outcomes Report