SC Portland Outcomes Report 2023

BONE HEALTH CLINIC The bone health clinic at Shriners Children’s Portland specializes in care for children with fragile bones. Installed in early 2023, the DEXA scan, a bone density scanner, allows our specialists to have the best information before deciding on treatments for children with weaker bones.

Treatments like infusions of zoledronic acid. Most notably, the DEXA scan helps inform medical staff to know the precise amount needed for each child who undergoes infusions.

MUSCULAR DYSTROPHY This specialty clinic provides comprehensive care from pediatric neurologists, orthopedic surgeons and pediatric rehabilitation specialists to provide care for muscular dystrophy. Patients may also see nurse practitioners, physical, occupational and speech therapists, pediatric psychologist, care coordinator, social worker and clinical dietician during the appointment. On the day of the visit, we have an expert on hand to make adjustments to wheeled mobility devices and orthotists to help with braces. ARTHROGRYPOSIS MULTIPLEX CONGENITA (AMC) Our medical team specializes in providing comprehensive and ongoing care and management for this rare orthopedic condition. Our team utilizes both non-operative and operative options to help patient’s improvement in range of motion and ultimately, their quality of life. SKELETAL DYSPLASIA At Shriners Children’s Portland, we are uniquely equipped to provide specialized care for patients who have any form of skeletal dysplasia. Our multidisciplinary clinic includes pediatric specialists in the areas of orthopedics, genetics, endocrinology, physical therapy, and more. Robert Bernstein, M.D., chief of staff at the Portland Shriners hospital, is nationally and internationally recognized for the care and treatment of children with skeletal dysplasia. He serves on the medical advisory board for Little People of America. CEREBRAL PALSY CARE INCLUDING SPASTICITY CLINIC AND TONE MANAGEMENT/ BACLOFEN CLINIC Our medical team, including pediatric orthopedists, neurologists, therapists and orthotists, work together with each patient and their family to prescribe a customized care plan for children with cerebral palsy. Treatment options may include referrals to our tone management clinic or Baclofen clinic, a visit to our motion analysis center, and a customized plan involving surgery to correct contractures and bony alignment when necessary. A multidisciplinary team works collaboratively to improve each patient’s range of motion, motor function, and comfort.

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