2020 Outcomes Report Portland Shriners Hospital

Specialty clinics Shriners Hospitals for Children — Portland offers multidisciplinary specialty clinics for patients who benefit from a collaborative approach to care with multiple medical specialists. Coordinated by our care management team of registered nurses and social workers, our specialty clinics bring together a variety of specialists all in one place. Specialists include pediatric practitioners; geneticists; neurologists; endocrinology; cleft lip and palate/dental; and orthopaedists. In addition, social workers; child life specialists; physical, occupational and speech therapists; and orthotics and prosthetic services staff are available. Following each clinic, the team of professionals meets to discuss each child and develop a treatment plan. This interdisciplinary program allows specialists in various disciplines to assess the nuances of each case and collaborate to identify the problem. This collaboration ultimately results in the most well-rounded, thorough and comprehensive care for each patient. Specialty clinics include:

Spina Bifida Spina bifida can manifest in a number of ways, from major

complications to mild symptoms that don’t require as much medical intervention. Shriners Hospitals for Children - Portland is active in the most up-to-date research, leveraging evidence-backed treatment to help children with spina bifida live their best lives. Our team is comprised of experienced pediatric orthopaedists, neurologists, urologists, and pediatricians with expertise in spina bifida care. Common spina bifida treatments and therapies include physical and occupational therapy, orthotics, and surgery.

Muscular Dystrophy This specialty clinic provides comprehensive care from pediatric neurologists, orthopaedic surgeons and pediatric rehabilitation specialists to provide care for muscular dystrophy. Patients may also see nurse practitioners, physical, occupational and speech therapists, pediatric psychologist, care coordinator, social worker and clinical dietician during the appointment. On the day of the visit, we have an expert on hand to make adjustments to wheeled mobility devices and orthotists to help with braces.

Cerebral Palsy care including Spasticity Clinic and Tone Management/Baclofen Clinic

Our medical team, including pediatric orthopaedists, therapists and orthotists, work together with each patient and their family to prescribe a customized care plan for children with cerebral palsy. Treatment options may include referrals to our tone management clinic or Baclofen clinic, a visit to our motion analysis lab, and a customized plan involving surgery to correct contractures and bony alignment when necessary. We also specialize in spasticity and tone management for patients with conditions, like cerebral palsy, that reduce spasticity. A multidisciplinary team works collaboratively to improve each patient’s range of motion, motor function, and comfort.

Arthrogryposis Our medical team specializes in providing comprehensive and ongoing care and management for the rare orthopaedic condition arthrogryposis. Our team utilizes both non-operative and operative options to help patient’s improvement in range of motion and ultimately, their quality of life. Skeletal Dysplasia At Shriners Hospitals for Children — Portland, we are uniquely equipped to provide specialized care for patients who have any form of skeletal dysplasia. Our multidisciplinary clinic includes pediatric specialists in the areas of orthopaedics, genetics, endocrinology, physical therapy, and more. Robert Bernstein, M.D., chief of staff at the Portland Shriners Hospital, is nationally and internationally recognized for the care and treatment of children with skeletal dysplasia. He is on the medical advisory board for Little People of America.

Spinal Muscular Atrophy At Shriners Hospitals for Children - Portland, we treat the child, not the condition. While there currently is no cure for spinal muscular atrophy (SMA), the Portland Shriners Hospital focuses our treatment goals on managing any pain that children with this condition may have and improving their quality of life. The specific treatment will vary depending on the patient’s age, general health, medical history and the type of SMA they have. Once symptoms of SMA are exhibited, Portland Shriners Hospital medical staff can conduct several tests to diagnose the type of SMA they may have, such as blood tests, muscle biopsy, or electromyogram (EMG).

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